What is Phelan-McDermid Syndrome? What are its symptoms? How many people are affected? These are questions that caregivers of individuals with #PhelanMcDermidSyndrome hear all of the time.
Caregivers — RT to help raise #awareness of this #raredisease.
@elonmusk Any chance you’d be interested in #PhelanLucky to support kids like my son, Jack, who has been diagnosed with #PhelanMcDermidSyndrome? I’d 💚 to send you #yournewfavoriteshirt!
In case anyone wanted to help support kids with #phelanmcdermidsyndrome
The sweet angel of a girl who I do respite work with has this syndrome- and she is an absolute ray of beautiful sunshine
✅ ¿Sabes cuáles son las causas de #SindromePhelanMcDermind?
💚 El síndrome de Phelan-McDermid es una condición genética que se produce debido a la deleción del cromosoma 22q13.
📗 Para más info ➡️⬅️
#phelanmcdermid #22q13 #phelanmcdermidsyndrome
✅ ¿Sabes cuáles son las causas de #SindromePhelanMcDermind?
💚 El síndrome de Phelan-McDermid es una condición genética que se produce debido a la deleción del cromosoma 22q13.
📗 Para más info ➡️⬅️
#phelanmcdermid #22q13 #phelanmcdermidsyndrome
@blakeshelton As a mom to a teenager with #PhelanMcDermidSyndrome, I am so thankful you are #PhelanLucky in 2021! I’ve been a big @blakeshelton fan since the beginning and this is one more reason to love you!
Y’all join me & start 2021 off by showing kindness to others & #PhelanLucky!!!! Grab your perfect St. Pat's Day shirt before 1/24 & help support kids with #phelanmcdermidsyndrome.
Grab #yournewfavoriteshirt and #ROCKyourshamROCKS for the 2,600 and counting families worldwide who are living with the challenges of #phelanmcdermidsyndrome. Isn't it about time the world was #PhelanLucky?
🍀 ¡Bienvenido 2⃣0⃣2⃣1!
🙏 Desde Phelan damos la bienvenida a este año nuevo. Deseamos que el 2021 sea un año diferente lleno de alegría, solidaridad, paz y felicidad!
#Felizaño2021 #phelanmcdermid #22q13 #phelanmcdermidsyndrome #sindromephelan
A Google Doodle I can get behind😊 #PhelanLucky seems like a natural fit? In 6 days, you'll have the opportunity 2 support a growing # of families around the🌎 who are living w/ a #phelanmcdermidsyndrome diagnosis by purchasing an awesome shirt. It's that easy!
We’re excited to announce the launch of CureSHANK’s two signature programs to address the major gap areas in drug development for #PhelanMcDermidSyndrome: SHANK3 Therapeutic Accelerator and Trial Ready. Please support CureSHANK by making a #donation:
¡Os deseamos Feliz Navidad para este año tan atípico!
💪Sabemos que 2020 ha sido un desafío para todos por eso queremos daros las gracias por seguir creciendo y luchando juntos.
🎄 ¡Feliz Navidad 2020!
#FelizNavidad2020 #phelanmcdermid #22q13 #phelanmcdermidsyndrome
Please come and support my family cause ! #phelanmcdermidsyndrome #walkerwarburgsyndrome #specialneexs
raising awareness for phelan-mcdermid syndrome and Walker-warburg syndrome i do this by streaming please if anyone is willing to hear my story about my children please dont hesitate to message me <3 #phelanmcdermidsyndrome #walkerwarburgsyndrome #Streamer #MyStory #mylife #mykids
Time to stream dead by daylight come on in for a chat !! ❤️❤️ #twitchstream #TwitchStreamers #streamerwall #STREAM #gamergirl #DeadbyDaylight #AutismAwareness #phelanmcdermidsyndrome
#goinglive #twitch #twitchstreamer #twitchaffiliate #twitchtv #phelanmcdermidsyndrome #streamer follow me ! sandy_panda25 #deadbydaylight
Time for a Saturday stream !! Come join the panda !! #DeadbyDaylight #twitchstream #twitch #streamerwall #gamergirl #saturdaystream #phelanmcdermidsyndrome
The panda is going live !! Come check me out guys #smallstreamer #twitchstreamer #twitchgirls #support #phelanmcdermidsyndrome #streamerwall #redhead #gamergirl
GIVEAWAY !!
Going live in 5 guys raising awareness for phelan mcdermid syndrome for my kids ❤️🐼 #Giveaways #TwitchAffilate #DeadbyDaylight #SmallStreamersConnect #phelanmcdermidsyndrome
Progress being made...finally!
🗓️ Today, December 3, is the International Day of Persons with Disabilities.
💚 Thanks to all of you who support different causes.
💚 Gracias a todos los que apoyáis diferentes causas.
#phelanmcdermid #heroes #phelanmcdermidsyndrome #internationaldayofpersonswithdisabilities
🟢 Today, one month after International Phelan-McDermid Day, we want to thank all the countries that lit up green to give visibility to this disease 💚
#shinegreen #brilaporphelan #22q13 #phelanlucky #phelanmcdermid #phelanmcdermidsyndrome
20 países diferentes se unieron por una misma causa durante la primera Run Like a Hero Global Running Week 🏃🏼🏃🏽♂️🏃🏻♀️
Estamos muy agradecidos y esperamos ser más cada año 💚
#runlikeaherophelan #globalrunningweek #22q13 #phelanmcdermid #phelanmcdermidsyndrome #sindromephelan #pmsf
We lit the city of Greensboro, NC GREEN for Phelan Mcdermid Awareness day 💚💚💚 #TeamGinger #PhelanMcdermidSyndrome #22Q13Deletion #PhelanLucky #PhelanBlessed #CareAboutRare #October22nd #InternationalPhelanMcdermidSyndromeDay
#thankyou #Pittsburgh #pmsf #phelanmcdermidsyndrome #steelcity @heinzfield #shine #tough #grit #champions #love
La #carrerasolidaria para concientizar sobre el síndrome @PhelanMcDermid está en marcha
#HablemosDeAutismo #dalesvoz #22q13 #phelanmcdermid #phelanmcdermidsyndrome #sindromephelan #pmsf #brillaporphelan
📞 @rbteran habla del Síndrome @PhelanMcDermid
#Ahora en #ElFactorMario con
@mmactas por @Cultura979 📻
#HablemosDeAutismo
#dalesvoz
#22q13
#phelanmcdermid
#phelanmcdermidsyndrome
#sindromephelan
#carrerasolidaria
#pmsf
#brillaporphelan
@heinzfield @Phelan_McDermid From Mt.Washington! What a hopeful and powerful image, truly representative of Ada and ALL her PMS brothers and sisters! Thank you!!!! #shine #hope #truechampions #phelanmcdermidsyndrome
Today was International #PhelanMcDermidSyndrome Day and this kiddo was proud to wear his shirt in support of his sibling. 💚 @HeritageHills_ #highlevelglowsgreentonight
@lascalzadas bonito gesto en el día internacional Phelan McDermid. Compañeros y profesionales del centro mil gracias.
#dalesvoz
#22q13
#phelanmcdermid
#phelanmcdermidsyndrome
#sindromephelan
#carrerasolidaria
#pmsf
#brillaporphelan
Hoy, 22 de octubre, es el Día Internacional del síndrome
@PhelanMcDermid 🟢
Puedes ayudar participando en la carrera solidaria
@RunPhelan
#runlikeahero
#dalesvoz
#22q13
#phelanmcdermidsyndrome
#carrerasolidaria
#brillaporphelan
Hoy, 22 de octubre, es el Día Internacional del síndrome @PhelanMcDermid
Puedes ayudar participando en la carrera solidaria
@RunPhelan
#runlikeahero
#dalesvoz
#22q13
#phelanmcdermidsyndrome
#carrerasolidaria
#brillaporphelan
Arte 💚💚
#HOY es el día internacional del Síndrome @PhelanMcDermid
@BombitaDarin brindo su apoyo y se notó 💚
#HablemosDeAutismo
#dalesvoz
#22q13
#phelanmcdermid
#phelanmcdermidsyndrome
#sindromephelan
#carrerasolidaria
#pmsf
#brillaporphelan
It has been under 2 decades since Phelan McDermid Syndrome was unraveled as a genetic disorder. On this day, @ordindia.in would like to play it's part in creating awareness about the rare condition
#phelanmcdermid
#phelanmcdermidsyndrome
#psmf #phelanmcdermidespana
It has been under 2 decades since Phelan McDermid Syndrome was unraveled as a genetic disorder. On this day, @ordindia.in would like to play it's part in creating awareness about the rare condition
#phelanmcdermid
#phelanmcdermidsyndrome
#psmf #phelanmcdermidespana
El #autismo puede ser un #síntoma de una enfermedad de base
22 de octubre dia internacional Sindrome @PhelanMcDermid
#HablemosDeAutismo
#dalesvoz
#22q13
#phelanmcdermid
#phelanmcdermidsyndrome
#sindromephelan
#carrerasolidaria
#pmsf
#brillaporphelan
@BombitaDarin ❤️
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